Road to the Charter

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THE EVERY WOMAN STUDY™

Guided by an international expert advisory panel, the World Ovarian Cancer Coalition undertook the Every Woman Study™ in 2018. The Study included the largest-ever global survey of women with the disease. The objective was simple: to address the evidence gap and identify a way forward to ensure the best chance of survival and the best quality of life for women with ovarian cancer.

 

Peer reviewed and published in the International Journal of Gynecologic Cancer, the Study included qualitative research with women in low- and middle-income countries and the 2018 World Ovarian Cancer Coalition Atlas – a literature review of incidence, mortality, survival, and trends around the world.

The Study showed what was already suspected – that there are major differences around the world in terms of best practices and local challenges in addressing ovarian cancer. No single region or country has all the answers, and all could benefit if best practices were shared and the variations were addressed.  The results highlighted a number of critical areas of focus that form the heart of the Global Ovarian Cancer Charter and the six Global Goals.

Click below to download for more information about the Study and its results.

 

EXPERT ADVISORY PANEL

The Every Woman Study™ was carefully guided at every stage by an international panel of ovarian cancer experts and patients. We are grateful for their invaluable knowledge and insight.

We are also indebted to the support of the women from around the world who took time to be interviewed and complete the survey, the clinicians who shared their views and insights, and our partner organizations that supported the process and provided their perspectives on priorities.

CO-CHAIRS

Dr Neerja Bhatla
Chair of the FIGO Gynaecologic Oncology Committee, and Professor at the All India Institute of Medical Sciences, Delhi, India.

Annwen Jones, OBE
Vice-Chair of the World Ovarian Cancer Coalition and Chief Executive of Target Ovarian Cancer, UK.

MEMBERS

Dr Tracey Sheridan Adams
Groote Schuur Hospital, Cape Town, South Africa

Amanda Benites
Patient representative, Brazil

Dr Stephanie Blank
Professor at the Icahn School of Medicine at Mount Sinai in New York and Director of Women’s Health, Mount Sinai Downtown Chelsea Centre, USA

Robin Cohen
Executive Director of the Sandy Rollman Ovarian Cancer Foundation; Oncology nurse specialist in Philadelphia; board member of the World Ovarian Cancer Coalition; and of the Ovarian Cancer Research Fund Alliance, USA

Diane Gardiner AM
Patient representative, Australia

Sylvia Gregory
Patient representative, Italy

Dr Amit Oza
Professor of Medicine at the University of Toronto, and Medical Director of the Cancer Clinical Research Unit, Princess Margaret Cancer Centre, Toronto, Canada

Makiko Suzuki
Patient representative, Japan