The Every Woman Study

The World Ovarian Cancer Coalition Every Woman Study was undertaken to address the evidence gap relating to the experiences of woman with ovarian cancer around the world. Our objective for undertaking the study was simple: to identify what needs to be done to tackle this deadly disease and to ensure that every woman diagnosed with ovarian cancer has the best possible chance of survival and best quality of life possible – wherever she lives.

With over 1,500 responses from women from 44 different countries we are confident that the Every Woman Study survey is the largest global survey of its kind ever completed. That survey, plus contributions from our World Ovarian Cancer Coalition patient advocacy partner organizations and 37 clinicians from 15 countries, offers a powerful insight into patient experience and the challenges and opportunities facing the global ovarian cancer community.

The Every Woman Study was guided by an International Expert Advisory Panel at every step along the way.

The findings of the Every Woman Study highlight the critical action needed to raise awareness of the disease and its symptoms, increase knowledge about the importance of family history and genetic testing, the need to ensure that all woman have access to specialist treatment in a timely manner, and access to the support and information they need. The study also shows that no one country has all the answers and there are significant opportunities to improve survival and quality of life for women in the immediate and short term by addressing variations between countries and bringing all countries up to those that perform best in specific areas.

With some 600,000 women living within five years of their diagnosis of ovarian cancer, slow progress in improving low survival rates when compared to other cancers and incidence set to grow 55% by 2035, efforts to improve survival and quality of life for these women is an ever-increasing and pressing global challenge.

The Every Woman Study Summary Report provides an overview of the key findings of the research and recommendations for action.

The study summary draws on the detailed findings of the following three individual reports:

The World Ovarian Cancer Coalition Atlas 2018
The Every Woman Study Women’s Survey 2018 Full Results
The Every Woman Study Clinician Report 2018

The Every Woman Study has been guided at every stage by an international panel of ovarian cancer experts, including patients. We are grateful for the knowledge and insight that panel has brought to this work.

We are also indebted to the support of the women from around the world who took time to be interviewed and to complete the survey: the clinicians who shared their views and insights and the World Ovarian Cancer Coalition partner organizations that supported this work and provided their views on priorities.

Expert Advisory Panel

CO-CHAIRS

• Dr Neerja Bhatla, Chair of the FIGO Gynaecologic Oncology Committee, and Professor at the All India Institute of Medical Sciences, Delhi, India.
• Annwen Jones, Vice-Chair of the World Ovarian Cancer Coalition and Chief Executive of Target Ovarian Cancer, UK.

MEMBERS

• Dr Tracey Sheridan Adams, Groote Schuur Hospital, Cape Town, South Africa
• Amanda Benites, patient representative, Brazil
• Dr Stephanie Blank, Professor at the Icahn School of Medicine at Mount Sinai in New York and Director of Women’s Health, Mount Sinai Downtown Chelsea Centre, USA
• Robin Cohen, Executive Director of the Sandy Rollman Ovarian Cancer Foundation; Oncology nurse specialist in Philadelphia; board member of the World Ovarian Cancer Coalition; and of the Ovarian Cancer Research Fund Alliance, USA
• Diane Gardiner AM, patient representative, Australia
• Sylvia Gregory, patient representative, Italy
• Dr Amit Oza, Professor of Medicine at the University of Toronto, and Medical Director of the Cancer Clinical Research Unit, Princess Margaret Cancer Centre, Toronto, Canada
• Makiko Suzuki, patient representative, Japan

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