GLOBAL OVARIAN CANCER CHARTERSIX GLOBAL GOALS
Global PriorityOvarian cancer must become a global priority, so that the increasing burden and challenges of successfully treating women with ovarian cancer are recognized and planned for at local, regional, and national levels.
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Rapid DiagnosisWomen must have access to diagnosis without delay. Symptom awareness must be improved so women seek and access appropriate help quickly. Doctors also need support so they know who should undergo testing and that they have access tests without delay so more women can start and tolerate treatment quickly.
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Best Possible CareWomen must have access to surgery, treatments, and clinical trials that optimize their chances of survival and quality of life, no matter where they live. Lack of finance should not be a barrier to best possible care, nor should the gap between highest and lowest resource countries widen any further.
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Family HistoryWomen and doctors must have access to appropriate and timely genetic testing and counselling. For women with a family history of ovarian and other cancers1 it is important to determine if they or others in their family are also at risk.
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Data ImprovementThe quality and quantity of data fluctuates around the world, hindering abilities to quantify the burden of ovarian cancer or develop evidence-based strategies. Data used to develop cancer control plans and treatments must reflect the diversity of local populations to ensure the best possible outcomes.
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Information and SupportWomen must have access to good, quality information and support in their own language that helps them to live well with the disease. Mental and physical well-being should be addressed and considered in equal measure.
XGeorgia,
Melbourne, Australia
Sue T,
Wanaka
KolGOTrg,
Kolkata, India
KolGOTrg
KolGOTrg welcomes the Global Ovarian Cancer Charter because of its ability to highlight the challenges of progress for women with ovarian cancer in low and middle-income countries such as India where we are based and the need to close the gap with more affluent settings. We hope that the work we have undertaken to establish a patient focused clinical research group within a tertiary cancer centre in such a setting, will encourage others down this hard but rewarding path to driving much closer and fruitful engagement with patients and improvements in survival.
For details on their projects that speak to Best Possible Care and Family History, click [here]
Maria,
Milano
Corina,
Ridderkerk
Marie-Eve Charrois,
Quebec
Brianna Wagner,
Highland Lakes, NJ
Tracey Adams,
South Africa
Cure Our Ovarian Cancer,
New Zealand
Cure Our Ovarian Cancer
Cure Our Ovarian Cancer is excited to be a Champion of the Global Ovarian Cancer Charter. We are a global research charity based in New Zealand. We work around the world on behalf of women diagnosed with low-grade serous carcinoma, a rare and stubborn form of the disease. It is our hope that with global collaboration and targeted research we can create better outcomes for women with low-grade serous carcinoma and all types of ovarian cancer.
For details on why Cure Ovarian Cancer is a Charter Champion click [here]
Ernie Longo,
Toronto
Lilies of the Valley,
Huntsville, AL
Serv. de Ginecologia Onc. Inst. de Onc. Miguel Perez Carreño,
Venezuela
Hope Light Fdn,
Missouri, USA
Michele,
Florence
Kathy Walden
Marjorie B. Bernal,
Alabama
Cancerbd.net,
Bangladesh
GOSON,
Nigeria
GOSON
As a young mixed specialty organization, we at the Gynaecological Oncology Society of Nigeria believe the Global Ovarian Cancer Charter is important for us and for all of Nigeria. Being a Champion of the Charter will allow us to better advocate for necessary improvements for women with ovarian cancer and curb the trend in our country and other lower resource countries.
For information on their projects that support Global Priority, Data Improvement, and Information and Support click [here]
Bright Pink,
Chicago, USA
Bright Pink
As an American women’s health organization dedicated to saving lives from breast and ovarian cancer by empowering women to learn and manage their cancer risk, Bright Pink is excited to support the Global Ovarian Cancer Charter as a Champion. This global effort to improve awareness, detection, and care for women from many different settings elevates the challenges and solutions we want to bring to the healthcare and broader community’s attention about this deadly and little-known disease.
For details on their Family History project, click [here]
Roxanne,
West Virginia
Runcie C.W. Chidebe,
Abuja, Nigeria.
ASACO,
Spain
ASACO
At ASACO we believe we need to highlight the need for increased symptom awareness, psychological support, patients’ right to ask for new treatments and the importance of procedures performed by a Gynaecological Oncologist. In Spain, ovarian cancer is still quite unknown and ASACO is proud to be a Charter Champion in the hopes to make a difference for all women in Spain and around the world.
For details on their Champion projects supporting Global Priority and Information and Support click [here]
Marsha,
Toronto
Carol Scott
Stephanie O
Alison Farmer,
Southampton
EVITA Hereditary Cancer,
Lisbon, Portugal
Francesca Bresssan,
Roma
Touch of Teal,
London, England
Ovarian Cancer Canada,
Toronto, Canada
Ovarian Cancer Canada
Ovarian Cancer Canada is excited to be a Champion of the Global Ovarian Cancer Charter. This important global effort is a crucial step forward in the fight against ovarian cancer as we all work together to make a difference advocating for improvements for all those diagnosed with the disease. Regardless of geography, there are steps we can take now and lessons to be learned from one another to change the future of ovarian cancer. We look forward to collaborating with our global colleagues and sharing best practices for the benefit of all women, no matter where they live.
For details on their project that supports the goal of Global Priority, click [here].
Luciana Holtz,
São Paulo, Brazil
Michael,
LA
Adele,
London
Kowalchick
WOCACA,
Lilongwe, Malawi
Alan Nagle,
Westmeath
ACTO,
Italy
ACTO
Acto (Alleanza contro il Tumore Ovarico) supports and is proud to be a Champion of the Charter which will help our patient organizations in Italy and beyond be heard. Our #PowerfulVoices will help change the future of ovarian cancer. We are more #PowerfulTogether.
For details of their projects that support Best Possible Care, click [here]
Lilongwe, Malawi
Alice,
Washington
Mike
Eierstockkrebs Deutschland e.V.,
OC Germany
Eierstockkrebs Deutschland e.V.
Eierstockkrebs Deutschland e.V. promotes access to best possible care within Germany through a comprehensive program of resources for women as well as clinicians. The organization actively promotes the importance of accessing care through designated specialist treatment centres by providing accessible information for women.
Frank Cosgrove,
Kilkee
Linda Maniezzi,
Firenze
Columbia Asia Hospital,
Kolkata India
FORCE,
USA
FORCE
As an organization in the United States that works to improve the lives of individuals and families affected by hereditary cancers, FORCE is pleased to be a Champion of the Global Ovarian Cancer Charter as we work towards helping women understand and manage their risk, evaluate their treatment options, and gain information, resources and support as they navigate hereditary ovarian cancer.
For information on their projects that support Family History and Information and Support, click [here]
Mamma Mia!
Mr Jay Chatterjee,
Guildford, London, UK
Fdn for Women’s Cancer,
Chicago, USA
Helen Baker,
Dudley, UK
Ariel,
Toronto
Bibiana,
Bonn, Germany
Susan L.,
Huntsville, AL
Dr Fernando Hidalgo,
VENEZUELA
Ovarian Cancer Action,
London, United Kingdom
Sobrevivi ao câncer,
São Paulo, Brazil
SIMONA,
LECCE
Ceri,
Manchester, UK
Crystal,
Utah, USA
Becky Longo,
Toronto
Filippo,
Milano
Conor Bryce,
Limerick, Ireland
Sandy Rollman Ovarian Cancer Fdn,
Wynnewood, USA
Sandy Rollman Ovarian Cancer Fdn
The Sandy Rollman Ovarian Cancer Foundation is proud to champion the Global Ovarian Cancer Charter and shares in the commitment to improve the quality of life and best possible care for all women diagnosed with ovarian cancer, not just in the United States but around the world too.
For details of their Information and Support project, click [here]
Kelly Brown,
London, UK
Elisabetta R.,
Milano
Hadiza A-Arome,
Abuja
Marissa
Ylenia,
Sanremo
Professor Brendan Buckley,
Cork, Ireland
Lisbon, Portugal
OCRA,
NY, USA
Anna,
Corato
Elisabetta ACTO Italy,
Milan
Mallow Flower Fdn,
Hungary
Hannah Lippitt,
London
Jennifer Boyer,
Frederick, MD
Margherita Moretti,
Firenze
Lilly Laudadio,
Bari
Consuelo,
Trento
Chris,
Wallingford
Vicki,
Rocky River OH
Happy Turtle Foundation
IMV,
Halifax
Olivia Salamon
Acto Bari,
Bari
Nicole,
Wiesenthau GER 🇩🇪
Bronagh Traynor,
Cork
Rikke
Alison E,
Dorchester Ontario Canada
Ovarian Cancer Australia,
Melbourne, Australia
Ovarian Cancer Australia
On behalf of all women living with ovarian cancer today, and to all those who have been and will be affected by this disease we know there is no time to waste. That is why we at Ovarian Cancer Australia are proud to collaborate and work alongside the World Ovarian Cancer Coalition in this urgent global effort to ensure a future where the impact of ovarian cancer is greatly diminished.
For details on their projects that speak to Global Priority, Best Possible Care, and Information and Support click [here]
Rita Nasi,
Modena
Valeria,
Roma
Carol,
London UK
S. African Medical Research Centre,
South Africa
Marie Fenemore-Jones,
Truro, UK
Caterina Foti,
Firenze
Elyse Brannigan,
Toronto
The Dempsey Center,
Maine, USA
The Dempsey Center
The Dempsey Center supports the mission of the Charter to create access to treatment and support services.
The mission of the Dempsey Center is to make life better for people managing the impact of cancer. We provide counseling, support groups, programming for youth and families, complementary therapies, nutrition consults and classes, educational classes, movement and fitness consultations and classes. Our programs/services are located at our physical sites in Lewiston and South Portland Maine, and our virtual site Dempsey Connects. All programs/services are available to anyone impacted by cancer in the state of Maine, and select programs are available to those outside of the state. We seek to make accessing our programs as low barrier as possible – there is no charge for any of our programs/services.
Clara,
Nova Scotia
Karen Teasdale,
Thomasburg
Tracie,
Rainham, Kent, UK
Steph,
Shepparton
Anne Mellon,
Newcastle Australia
Ovarcome,
Houston, USA
Marianne,
Halifax NS Canada
laura,
Firenze
Clearity Foundation,
San Diego, USA
Clearity Foundation
The Clearity Foundation firmly believes that women with ovarian cancer in the United States deserve the best possible therapies for their unique condition, and we are there to support them as they make treatment decisions. We are proud to support the Global Ovarian Cancer Charter as a Champion, particularly around access to best possible care and clinical trials
For details of their projects that support Best Possible Care and Information and Support, click [here]
Anna Capurso,
Corato (Ba)
Kathleen Robb,
Adolphustown
Annamaria Leone,
Bari
Mark,
Aberystwyth
Alessandro,
Firenze
Sheri-Lyn Cullen,
Brandon, MB, Canada
Cath Dennis,
Chester
Antonella Ardito,
Bari
John Boris Granic,
Mississauga, Ontario
Project PINK BLUE,
Abuja, Nigeria.
Ever,
Toronto
Janet Hallam,
Ontario, canada
Anne,
São Paulo
Elisa Bolognese,
Lecce
MN Ovarian Cancer Allianc,
Minnesota
Veronica,
Meina
Regina P.,
Huntsville, Alabama
Carol Baker-Longshaw,
Manchester UK
Mike,
Toronto
Uzzi,
Florence, Italy
Sarbojaya,
India
#GYNcsm Twitter Community
Qatar Cancer Society,
Doha, Qatar
Ilaria,
Cervignano del Friuli
Elide Vitali,
Italy
Denise McCulloch,
Coffs Harbour NSW
Andrea Krull,
EskD Germany
Jennifer Melecio,
Massapequa
OVERRUN Ovarian Cancer,
Kansas City
Loto Onlus,
Italy
Loto Onlus
Loto Onlus is proud to be a Charter Champion in Italy, as we believe that together we can really make a difference for all women so that they are aware of advances in ovarian cancer research and therapies so we are able to improve their survival and quality of life.
For information on their projects supporting Best Possible Care and Rapid Diagnosis click [here]
Rita Treglia,
Italy Scorrano
Paul,
Toronto, Canada
Phaedra,
Lunenburg, Canada
Sara,
Firenze
Aisha Mustapha,
Zaria, Nigeria
AGO Research GmbH,
Wiesbaden, Germany
Mary Anne Keen
Catherine Hunt,
Harpenden, England
Robin Castro,
Charlotte, USA
Silvia,
Firenze
Caterina,
Firenze
Sam,
TO
Delphine,
Quebec City
Tes Ferdinand,
San Jose, CA
Acto Bari,
Bari, Italy
Tammy’s Totes of Hope,
USA
Allison Kemner
Nanette,
Mission BC Canada
Jen,
Ohio
Rhianna,
Baltimore
British Gynae. Cancer Soc.,
United Kingdom
GySy Finland,
Helsinki, Finland
Elisabetta Ricotti,
Milano
Alison Coughlan,
Melbourne, Australia
Susan,
TYNGSBOROUGH, MA
Toni Evans,
Townsville QLD
Frances,
United Kingdom
Helen Heagren,
Lincolnshire. UK.
Francesca G,
Genova
Jamie,
Lunenburg, Canada
Carla,
Carrying Place, ON
Ele Ludemann,
Windsor, New Zealand
AMUCC,
Florianópolis
Federica,
Pisa, Italy
Matealda Foundation,
Sweden
SMILEY,
Japan
Debbie Carter,
Portales, New Mexico
Silvia,
Domusnovas Italy
Instituto Oncoguia,
São Paulo, Brazil
Arianna,
Florence (italy)
Leyla,
Montreal
Cristina,
Italia 🇮🇹
SLOCA,
Missouri, USA
Teckro
Sabrina,
Firenze
Vivian,
Pennsylvania
Max,
Lively
Nikla Catapano,
Liguria, Italia
Jessica,
Firenze
ENGAGe-ESGO,
Europe
Annwen,
Target Ovarian Cancer Lon
Manuela,
Bologna, ITALY
GOC,
Ottawa, Canada
Pam,
Halifax, Nova Scotia
NOGGO,
Germany
NOGGO
As a Champion, North Eastern German Society of Gynecological Oncology (NOGGO) supports the Global Ovarian Cancer Charter and its efforts to improve opportunities to improve access to, and diversity of participants in clinical trials, so to improve outcomes for all women with ovarian cancer – no matter where they live.
For information on their project that focuses on Data Improvement, click [here]
Patrizia Maglio
Gavin,
Nova Scotia
Karen,
Ancaster
Carol Bewick,
London
Hope for Heather,
Liverpool, USA
Soc. Gyne. Oncology,
Chicago, USA
JESS,
Boston
Medicaid Cancer Fdn,
Abuja-Kebbi Nigeria
IGCS,
International
IGCS
As Strategic Advocacy Partners, the International Gynecologic Cancer Society and the World Ovarian Cancer Coalition collaborate on initiatives that provide tangible benefit to gynecologic cancer survivors worldwide. The Charter is a cornerstone of that partnership, a call-to-action with the potential to effect substantive improvements in ovarian cancer outcomes globally. IGCS is pleased to champion the Charter as a significant effort in the global fight against ovarian cancer.
For details of their project that supports Best Possible Care, click [here]
Irene,
Naples
Thalita Bottari,
São Paulo, BR
Ceri,
Manchester
Target Ovarian Cancer,
London, United Kingdom
Target Ovarian Cancer
Target Ovarian Cancer is championing the Global Ovarian Cancer Charter in the United Kingdom because it will spearhead a much-needed increase in awareness of ovarian cancer and an unprecedented opportunity to drive our mutual goal of transformational change for women through international collaboration.
For details on their Global Priority and Rapid Diagnosis projects, click [here]
GySy,
Suomi
Pauline,
Ireland
Go Girls,
Dorset, UK
Dee,
NJ
Dar Medcalf,
Coon Rapids
Nicole Stöhr,
Wiesenthau
Mohamed,
HALIFAX, CANADA
Rania,
HALIFAX, CANADA
SASGO,
South Africa
Paola Migliarini,
Milano
Claudia,
Firenze
Eva,
Firenze
Margaret D,
Kildare Ireland
NICOLETTA,
MILANO
Milli
Deirdre Quirke,
Limerick
Andrea B.,
Firenze (Italy)
Prof. Dr.
Jalid Sehouli,
Berlin
BP,
Bari
